Prácticas diarias del cuidador informal de pacientes oncológicos ambulatorios. Año 2019
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Sanatorio Allende. Departamento de Enfermería
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la enfermedad oncológica se caracteriza por una
profunda alteración de la regulación del crecimiento y/o muerte
celular, con capacidad de diseminarse a distancia. Durante su
tratamiento requieren de la ayuda de cuidadoresque muchas veces
son los propios familiares, personas de su entorno que asume
voluntariamente el papel de responsable en un sentido amplio y
está dispuesto a tomar decisiones por y para el enfermo. Por ello,
este estudio buscó describir las prácticasde cuidado realizadas
diariamente por el cuidador informal de pacientes oncológicos
ambulatorios asistidos un hospital público de la ciudad de
Corrientes durante 2019. Con diseño descriptivo, transversal y
observacional la muestra se conformó con cuidadores informales
que reunían criterios de inclusión, exclusión y eliminación
definidos previamente. La recolección de datos se realizó entre
agosto a octubre de 2019 mediante aplicación de un cuestionario
a 90 cuidadores informales. La edad promedio fue 43 años,
76% eran mujeres, en parentesco 44% eran hijos/as y 24% las
parejas. En promedio dedicaban 14hs diarias alos cuidados, con
un 47% que lo hacía en los tres turnos.El 42% eran trabajadores
dependientes, 26% amas de casa,12% estudiantes, jubilados 7%;
trabajadores independientes 9% y 4% desocupados.La actividad
que realizaban con mayor frecuencia fue el acompañamiento a
las consultas clínicas con un 81%. Estos cuidadores además de
desarrollar prácticas diarias con su familiar enfermo también
cumplían obligaciones de trabajo y estudio. La existencia de esta
enfermedad afecta la vida no solo de quien la padece de manera
directa sino también la de la familia y de manera inmediata la
del cuidador informal. Las repercusiones pueden minimizarse si
reciben un soporte adecuado por parte de enfermería, incluyendo
en sus cuidados no solo a la persona enferma sino también al
cuidador informal.
oncological disease is characterized by a profound alteration in the regulation of cell growth and / or death, with the ability to spread remotely. During their treatment they require the help of caregivers who are often their own family, people from their environment who voluntarily assume the role of responsible in a broad sense and are willing to make decisions for and by the patient. Therefore, this study sought to describe the care practices carried out daily by the informal caregiver of assisted outpatient oncology patients in a public hospital in the city of Corrientes during 2019. With a descriptive, crosssectional and observational design, the sample was made up of informal caregivers who met criteria of inclusion, exclusion and elimination previously defined. Data collection was carried out between August to October 2019 by applying a questionnaire to 90 informal caregivers. The average age was 43 years, 76% were women, in relation 44% were children and 24% were couples. On average they dedicated 14 hours a day to care, with 47% doing it in the three shifts. 42% were dependent workers, 26% housewives, 12% students, 7% retired; freelancers 9% and 4% unemployed. The activity they performed most frequently was accompaniment to clinical consultations with 81%. These caregivers, in addition to developing daily practices with their sick family member, also fulfilled work and study obligations. The existence of this disease affects the life not only of those who suffer it directly but also that of the family and immediately that of the informal caregiver. The repercussions can be minimized if they receive adequate support from the nursing staff, including not only the sick person but also the informal caregiver in their care.
oncological disease is characterized by a profound alteration in the regulation of cell growth and / or death, with the ability to spread remotely. During their treatment they require the help of caregivers who are often their own family, people from their environment who voluntarily assume the role of responsible in a broad sense and are willing to make decisions for and by the patient. Therefore, this study sought to describe the care practices carried out daily by the informal caregiver of assisted outpatient oncology patients in a public hospital in the city of Corrientes during 2019. With a descriptive, crosssectional and observational design, the sample was made up of informal caregivers who met criteria of inclusion, exclusion and elimination previously defined. Data collection was carried out between August to October 2019 by applying a questionnaire to 90 informal caregivers. The average age was 43 years, 76% were women, in relation 44% were children and 24% were couples. On average they dedicated 14 hours a day to care, with 47% doing it in the three shifts. 42% were dependent workers, 26% housewives, 12% students, 7% retired; freelancers 9% and 4% unemployed. The activity they performed most frequently was accompaniment to clinical consultations with 81%. These caregivers, in addition to developing daily practices with their sick family member, also fulfilled work and study obligations. The existence of this disease affects the life not only of those who suffer it directly but also that of the family and immediately that of the informal caregiver. The repercussions can be minimized if they receive adequate support from the nursing staff, including not only the sick person but also the informal caregiver in their care.
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Avalos, Úrsula, et al., 2020. Prácticas diarias del cuidador informal de pacientes oncológicos ambulatorios. Año 2019. Notas de Enfermería. Córdoba: Sanatorio Allende. Departamento de Enfermería, vol. 20, no. 35, p. 39-47. E-ISSN 2618-3692.
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